Annals of Epidemiology
Volume 18, Issue 6 , Pages 507-514, June 2008

Challenges and Rewards of Health Research in Northern, Rural, and Remote Communities

  • Nancy Lightfoot, PhD

      Affiliations

    • Division of Human Sciences, Northern Ontario School of Medicine
    • The Regional Cancer Program, Sudbury Regional Hospital, Sudbury, Ontario, Canada
    • Corresponding Author InformationAddress correspondence to: Nancy Lightfoot, PhD, Regional Cancer Program, Sudbury Regional Hospital, 41 Ramsey Lake Road, Sudbury, Ontario, Canada, P3E 5J1. Tel.: 1-705-522-6237 ext. 2488; fax: 1-705-523-7326.
  • ,
  • Roger Strasser, MBBS, MCISC

      Affiliations

    • Division of Clinical Sciences, Northern Ontario School of Medicine
  • ,
  • Marion Maar, PhD

      Affiliations

    • Division of Human Sciences, Northern Ontario School of Medicine
  • ,
  • Kristen Jacklin, PhD

      Affiliations

    • Division of Human Sciences, Northern Ontario School of Medicine

Received 7 September 2007; accepted 29 November 2007. published online 13 February 2008.

Purpose

This article, based on our collective experience of conducting population-based and industrially based health research in partnership with northern, rural, and remote communities in Canada and Australia, will convey the related challenges and opportunities, and provide recommendations.

Methods

(1) The role(s) of northern, rural, and remote communities; (2) ethics requirements; (3) study budgets and contracts; (4) questionnaire design, response rates, and the collection of biological specimens; and (5) preparation and presentation of results, their impact, knowledge translation, and future studies were considered.

Results

In our experience, it is important to be collaborative, respectful, and have a regular physical presence in such communities. Academic and community ethical review of the proposed research may be required. Written research proposals, contracts, and a communication plan for the results are strongly recommended. Questionnaire construction and acceptable methodology impact study success. Regular in person feedback to the communities is essential. It is important to collaboratively establish future related research priorities.

Conclusions

Although academic evaluation can promote the desire for the conduct of more rapid health research, successful research with northern, rural, and remote communities should build community capacity and requires time, a continuing presence, collaboration, respect, and active community involvement.

Key Words: Rural, Remote, Community-Based Participatory Research

Abbreviations and Acronyms: CBPR, community-based participatory research

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PII: S1047-2797(07)00495-4

doi:10.1016/j.annepidem.2007.11.016

Annals of Epidemiology
Volume 18, Issue 6 , Pages 507-514, June 2008